Gall Bladders

Gall bladders store bile to release when digesting fat or to compensate for acid stomach.   When doctors remove the gall bladder, it means that it is more difficult to digest fat and acid stomach will just stay acidic; talk about lost sleep due to acid reflux.  This begs the question – why don’t doctors inform the patient the importance of gall bladders & the side effects of removing them?

I wonder if doctors or researchers ever look into what percentage of porphyria sufferers have had their gall bladder removed.

And, how often a gall bladder is removed because the doctor is guessing at what is causing the pain endured by porphyria sufferers.

And, why don’t doctors just take the stones out of gall bladders instead of removing the gall bladder?

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5 Responses to Gall Bladders

  1. Stina says:

    I had my Gallbladder removed and I still sort of mourn for it. I have sort of minimal problems at this point, definitely get some indigestion from time to time. I worry more of what is down the road, how much strain it is putting on my system. I believe that most doctors simply preform the procedure without putting very much thought into the “lifestyle” of the patient.

  2. Corie Ganoe says:

    Just diagnosed end of March with AIP. I’ve been in and out of countless hospitals since last September when I had my first attack. Spent a week in the hospital getting so many tests and guess what??? They removed my gall bladder too! It really must be a thing! They also removed my Appendix, not nearly as important, but I’m still missing 2 organs for no reason at all!

    • Greg says:

      Corie, it really stinks that doctors are prone to so quickly remove organs. They act like the surgery & missing organs are no big deal. I am not sure of the effect of missing your appendix; but, I am familiar with the loss of a gall bladder. In my case the gall bladder was dead & gangrened; and, the gangrene had spread. But, it would have been nice if they had warned me of the effects on digestion. Watch your intake of fats! Greg

  3. JESSICA BECKNER says:

    Well now I’m concerned….just got out of the hospital following an attack, and they want to take my gallbladder out sometime next month. It was not my porph. doc/hematologist who suggested this, just whatever random doctor was on call that night. He was told I had porphyria, but we may as well never have mentioned it. Now I’m really wondering if it’s necessary….I asked about gallstones, and they told me I didn’t have any, so I can’t figure out where they came up with this diagnosis???!!!!

    • Greg says:

      If it was me, I would get a second opinion. And, it would seem like a good idea to talk to your porphyria doctor, whom I assume is your hematologist. It seems to me that doctors are way too quick to start cutting, especially with something like a gall bladder, that is frequently removed. I am not a doctor, and can only share my experience & opinions; but, I would highly recommend talking to a doctor that understands porphyria.

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