I have never been given hemin. There were some hospitalizations, in the past, where this may have been considered (and possible have been appropriate), if it had been known what I was suffering through. My hematologist doesn’t think it should be considered in my case.
Really, I am blessed, when you consider how bad some (most?) sufferers have it. I hear stories of unbelievable pain and suffering. It breaks my heart. In those cases, I would imagine that hemin is a God send. It appears that it is the next logical step after IV glucose; I saw one mention of 400g / day of glucose. Personally, I hope never to have to use hemin, as I try to keep all pharmaceuticals to a minimum.
I haven’t looked into this topic in a couple years; since then, there has been an explosion of information. However, after searching for about an hour, the majority of user responses that I have found, in regard to hemin, have been glowing reviews on the drug producer sites…go figure.
Anyway, here are the side effects:
- urinating less than usual or not at all;
- swelling, weight gain, feeling short of breath;
- easy bruising or bleeding; or
- swelling, pain, or irritation around the IV needle.
- It is a blood product – subject to same contamination concerns of any blood product (infection, virus, etc)
This note was also on Drugs.com:
Get emergency medical help if you have any of these signs of an allergic reaction while taking hemin: hives; difficulty breathing; swelling of your face, lips, tongue, or throat.