A family member with acute porphyria has trouble eating; this has been going on for 6 months. Not only is it hard to eat; but, there is a metallic taste & vomiting is imminent. EGADS! The only thing safe to eat is apple sauce….wow, too much fructose. Sometimes it is easier to eat with others around; but, alone…nope…it is a huge problem to eat alone.
I can only relate a little, in that I am on steroids to get over bad ear & sinus infections…and, food is not interesting. Of course, I am forcing myself to eat. But, it is nowhere near the problem described above. And, I know that steroids are not good for porphyria; but, it is the lesser of two evils.