Author Archives: Greg
I think of blogs as frequently updated journals. This is not that kind of site. I set this up as a resource for my family and for other porphyria sufferers. But, it is not a cobweb. I am notified of … Continue reading
I’ve known for a long time that coffee is not compatible with porphyria. But, I really like coffee and was able to get away with it for a long time. I’ve become so sensitive to it, that I had to … Continue reading
One of my weaknesses is sinus infections. I am allergic to many things and exposure causes my sinuses to be unhappy; then an infection sets in. For a long time, I have been relying in saline spray (Ocean brand from … Continue reading
It is my responsibility to manage my porphyria. This is not to take away from all of the support that I get from my beautiful wife; I don’t know how I would manage without her. But, the bottom line is … Continue reading
This is the way that I do it; but, you can remove the beef bone & chicken, if need be. Boiling the chicken on the bone and the beef bone draws needed nutrients from the marrow. Many with porphyria believe … Continue reading
Warning – be careful with ingredients. Dairy products can be a problem (I can manage in small amounts); too much avocado oil can be a problem, too. Baby Bel mushrooms Tomato sauce Green onions Sargento sharp cheddar (ultra-thin) – change … Continue reading
This is a wonderful time of year. Time to be thankful for all of our blessings and for the birth of our Lord. Now, to successfully avoid the chocolate & eggnog.
Every morning I wake up feeling like I have a hangover…and, I don’t drink! Eventually, that eases up & sometimes goes away. Those are good days. Sometimes, I think that I might as well drink when I want, since I already … Continue reading
The Snickers commercials nailed it. You are not yourself when you’re hungry…especially with porphyria. The effect is many times as strong because the glucose starvation is deeper & then you throw in those nasty porphyrins.
A high school friend lost his daughter, Kelly, to anorexia; he and his wife started a foundation called Something for Kelly to fight this problem. http://somethingforkelly.org/kellys-story/ Something for Kelly Foundation was nominated by Cunningham Fine Jewelry to receive a $10k … Continue reading